Chicago, Illinois 60640
Tel:  (773) 465-7536
The Tourette Syndrome Camp Organization is a 501 (c) (3) non-profit organization.

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Countdown to Tourette Syndrome Camp USA:     



Registration for the Washington DC Program - Thursday March 10 2016 - Saturday March 12 2016 is now open.
Click here to register.

The Organization

The Tourette Syndrome Camp Organization (TSCO) is a 501 (c)(3) tax exempt non-profit organization dedicated to promoting camping opportunities for children with Tourette Syndrome (TS) and Obsessive Compulsive Disorder (OCD) and its associated disorders Attention Deficit/Hyperactivity Disorder (ADD/ADHD).

The Program

The Tourette Syndrome Camp USA, founded in 1994, is a residential camping program designed for girls and boys ages 8 - 16+ whose primary diagnosis is TS, and to a lesser degree, OCD and ADD/ADHD. The goal of the camp is to allow children with TS an opportunity to meet other children, share similar experiences and coping mechanisms in a fun, safe and positive environment.

The TS camp is run concurrently with a traditional camp week. While there are separate cabins for the TS campers, all programming is done with the rest of the camp. However, we do have our own group time with the TS campers so they have an opportunity to share their experiences with each other. In addition, Camp Duncan is home to many medical camps such as ours which provide a safe, positive and understanding environment.

There is a nurse to handle medication and medical issues for the TS campers.

This year for our campers who are 16, we are adding a Counsellor in Training Program CIT. These campers wilbe given leadership opportunities that will help with a transition to possible future positions on our staff.

This is not a therapeutic program and the camp has some limitations in accepting children whose needs are beyond the scope of its design.

Campers must be able to handle routine daily living skills (i.e. dressing, self hygiene) and have the ability to function in a group setting. While the program is modified to meet the needs of most children whose primary diagnosis is TS, experience has demonstrated that not every child with TS is capable of participating in the camp program.

The Staff

In addition to providing in-service training for the Camp Duncan staff, TSCO augments the Tourette camps with special TS volunteer counselors who either have TS/OCD/ADD or have experience in dealting with the disorders. Our staff includes medical and psychiatric professionals that have volunteered as well as high school and college students along with young adults who hace a desire to work with children and are positive role models.

We are always looking for candidates to be counselors.
If you are interested, please apply for a staff position.

Staff Bios

Camp Director

Monica Newman has been on camp staff for 11 years. When she was 16 years old, she began her camp “career” as a junior counselor. Monica decided to become involved when her younger brother Sean (who is now also on staff) started attending camp. Monica became the Camp Director in the summer of 2011 after serving two years as Assistant Director. She is a Special Education teacher in a suburb of Chicago where she has given multiple in-service presentations about Tourette’s syndrome and has become her school districts resource person for Tourette’s syndrome. Monica graduated from Eastern Illinois University in 2009 with a Bachelor of Science degree in Special Education and is certified as a Learning Behavior Specialist 1. She is currently working towards a Master’s Degree at Concordia University Chicago. She will hold a graduate degree in Curriculum and Instruction (M.S. Ed) with an endorsement in English as a Second Language (ESL) in December 2013. Monica credits her brother as well as TS camp for her decision to pursue a degree and a career as a Special Education teacher. Watching her brother struggle through school pushed her to become an advocate for children with special needs. She looks forward to camp every summer and has joked that she is now a “lifer” with TS camp!

Assistant Director

Marleen Martinez Sundgaard has been Assistant Camp Director for five years. She joined the camp staff 7 years ago as a young adult with TS. She has been featured as part of the Family Portraits of Adults with TS in the Tourette Association of America Newsletter. Marleen has a degree in Aeronautical & Astronautical Engineering from the University of Washington. She has been involved with numerous spacecraft missions for NASA. Most notably the GRAIL twin satellites sent to the moon and the Orion spacecraft being built to send humans back to the moon and eventually to Mars. Her work was featured in the documentary Makers: Women in Space on PBS.

Director of Camper Success

Sarah Matchen has been on camp staff since 2001, starting as a counselor and moving into her current position after earning her Masters in Social Work. Sarah has her LCSW and the 51 weeks of the year she is not at camp she works as a crisis therapist with children, adolescents and families while dreaming of being back at camp!

The Facility

The Tourette Syndrome Camp USA is held at YMCA Camp Duncan which is located 30 miles north of Chicago. Camp is home to other special needs such as burn and diabetic Camp. The facility features an Olympic size indoor swimming pool and a semi-private lake. Their caring staff assures a positive experience in a caring environment.

Fall/Winter 2015/2016 Schedule

Family Fun Night at the Wisconsin Dells - Feb 27 2016 (5pm - 9pm)

On Saturday, February 27, 2016, the Tourette Syndrome Camping Organization will be hosting a family fun night at the Great Wolf Resort and Water Park in Wisconsin Dells, Wisconsin from 5 pm to 9 pm.

This event will be during the Wisconsin Tourette Association family weekend. Members of our Volunteer staff will be on hand to provide games and structured activities while the parents will have a chance to kick back. Most of the staff are High School or College Students with TS. The children will get a "taste" of what summer camp is like. There is no charge for this event but you will need to RSVP to

Washington DC Program - Thursday March 10 2016 - Saturday March 12 2016

The Tourette Syndrome Camping Organization in conjunction with the Joshua Center will be hosting a children's program during the Tourette Association National Conference on Thursday, March 10, 2016, Friday, March 11, 2016 and Saturday, March 12, 2016 in Alexandria, Virginia. The program is for children ages 7-14, whose primary diagnosis is Tourette Syndrome. The cost for the program will be $50 for Thursday and $260 per child for our Friday and Saturday Program. Financial aid may be available. We will also accept siblings of children with Tourette Syndrome.

The programming for Thursday, March 10, 2016 will include a trip to a nearby museum or other Washington DC Attraction based on the interest of the campers. On Friday, March 11, 2016 we will be at or around the Marriot Gateway Hotel for programming and will visit the Air and Space Museum. On Saturday, March 12, 2016, we are scheduled for a Tour of Washington DC. Lunch will be provided on both days.

The program will be staffed by members of both organization's camp staff consisting of young adults who have Tourette Syndrome or who have worked with children with TS and its associated disorders.

Please note that we cannot handle or administer any medications. However we will be at the Hotel both days by around lunch, if your child has any lunch time medications.

If you are interesting in having your child attend our program, please go to the registration page and fill out the online application. We require a $25 deposit to hold the place

Family Day at YMCA Camp Duncan - April 3 2016 (10am - 3pm)

The Tourette Syndrome Camp Organization (TSCO) will host a Family Day at Camp on Sunday April 3, 2016, from 10 am to 3pm at YMCA Camp Duncan in Ingleside, Illinois.

The cost for this program will be $10 per person including lunch.

You will have an opportunity to spend the day at camp while experiencing and participating in some of the same fun activities that campers enjoy during our summer camp. A number of our volunteer staff will be on hand to partake in the activities as well. This is your opportunity to experience a piece of camp.

Please RSVP for the event using our online RSVP form.

You may pay by Credit Card below via PayPal, or on the day of event with cash or check.

Funding for this event was made possible through grant from the Brad Cohen Tourette Foundation

Tourette Syndrome Camp USA - Sunday, June 26, 2016 - Saturday, July 2, 2016

Tourette Syndrome Camp USA, our summer camp, will be held from Sunday, June 26, 2016 till Saturday, July 2, 2016 at YMCA Camp Duncan. The cost of the program will be $620 (Or $610 by check or Money Order).

Click here for more information and to apply.

More Information

If you would like more information or desire to be put on our mailing list, please e-mail or call us at (773) 465-7536.